Your family member, sick and in pain, is in a hospital or nursing home and no one is available to help because the person is the next room is in critical condition and the entire floor staff is rushing around to help this person. You empathize thinking that if you were in a similar situation you would want everyone rushing around to save you. What you really do not know is that this emergency is due in some cases to financial self interest or lack of staff education regarding critical or end of life care. Most individuals do not fear death as much as the experience of a painful death and many nursing homes and assisted living facility staff do not have the training or desire to educate family members about hospice and palliative care services.
How can we make the stress of having a sick loved one, piled on top of daily stress easier for all involved when hospitals, nursing homes and assisted living locations often provide end of life care? Whether you recently experienced the loss of someone you know or are currently experiencing the decline of a loved one there are steps that can be taken to ease the journey but you must be the one to ask questions because many facility staff lack training in hospice and palliative care.
According to research by Lisa Welch, Ph.D. few nursing homes or assisted living facilities have written procedures for regularly assessing residents' terminal disease status or eligibility for hospice care. Instead, many staff members base their timing and referral of hospice based on their ability to recognize decline, their personal beliefs about hospice services and their initiative in raising hospice as an option. What happens when facility staffs have little or no education relative to palliative or hospice care and family members rely on their level of experience to help their loved ones? The result is often family frustration, little or no pain assessment or management for the loved one and a painful death.
In my work, I have been personally told by facility staff that their administration does not want them recommending outside hospice services because that means that money leaves the building. Or, as the research mentions, if there is no family requiring support, hospice is not recommended and is instead provided by their own staff, lacking hospice background. In these cases, offering hospice becomes a territorial issue founded by concerns over money and staffing. How can family members trust health care providers when the concern for money and self interest overrides the care needs of their family members at an especially critical time of life? This choice should not be a decision made by facility staff but the decision of the individual or family member involved.
"Additionally, timing of hospice referrals is often delayed because staff members believe that hospice is appropriate only for the very end of life. There was often a discrepancy of weeks or months between when staff reported recognizing terminal decline and when referral to hospice occurred." It is clear that training needs exist for staff relative to recognizing declines and understanding the benefits of hospice services. In defense of facility staff, I have experienced instances where fear of breaking rules or regulations or chastisement by a superior prevents staff from doing the right thing. However in these cases mysteriously a phone call or recommendation is made and I become involved to help families navigate the situation.
Until the level of palliative and hospice care education catches up with the need, family members will have a greater level of responsibility navigating the care of loved ones experiencing declines in health. It's never too early to ask about palliative or hospice care; however it can be too late. Too late is when a loved one is days away from passing and has already likely experienced a high degree of pain and discomfort. In the instance you ask and it is not quite time for palliative or hospice care, at least you have been proactive in your own education and when the time does come you'll be more prepared and less reliant on others to recognize the signs or request assistance.
Welch, Lisa C. Ph.D. et. al. Referral and Timing of Referral to Hospice Care in Nursing Homes: The Significant Role of Staff Members. The Gerontologist. Vol 48, No. 4, 477-484.
Pamela D.Wilson, The Care Navigator, specializes in consulting, planning and education for families and individuals experiencing transitions in health care. Contact her at The Care Navigator or visit The Care Navigator Blog for free information
Thursday, April 29, 2010
Tuesday, April 27, 2010
Hospice Care Hosts “Walk or Bike for Hospice”
It’s time to hit the trail. Hospice Care Corporation is once again hosting its Preston County “Walk or Bike for Hospice”. This year’s event will take place on Sunday, May 2nd at the Rail Trail parking lot on Rt. 92 in Reedsville, WV.
By participating you will not only be enjoying the beautiful scenery and weather; but, supporting a very important cause. The “Walk or Bike for Hospice” provides funds to serve patients in our community who suffer from a life threatening illnesses.
“It’s been a few years since we have held this event and people began asking if we were ever going to host the walk again. And, I thought yes perhaps now is the time,” said Kim Riley, Fundraising Event Coordinator.
Participants can walk or bike in memory of a loved one or friend for by collecting sponsorships on behalf of themselves or a group. Certificates will be awarded to the top community group, church, school & business that collect the most money. Everyone that collects or donates $20 or more will receive a t-shirt and a free picnic will follow the event.
Registration begins at 1PM with the walking or biking starting at 2PM. Pre-registration is not necessary, but those under 18 years of age must have a parent signature on their form. Registration forms may be obtained at local banks and businesses. And, if you need more information about being a sponsor or registering to participate, please call Kim Riley at (304) 864-0884 or email her at kriley@hospicecarecorp.org
By participating you will not only be enjoying the beautiful scenery and weather; but, supporting a very important cause. The “Walk or Bike for Hospice” provides funds to serve patients in our community who suffer from a life threatening illnesses.
“It’s been a few years since we have held this event and people began asking if we were ever going to host the walk again. And, I thought yes perhaps now is the time,” said Kim Riley, Fundraising Event Coordinator.
Participants can walk or bike in memory of a loved one or friend for by collecting sponsorships on behalf of themselves or a group. Certificates will be awarded to the top community group, church, school & business that collect the most money. Everyone that collects or donates $20 or more will receive a t-shirt and a free picnic will follow the event.
Registration begins at 1PM with the walking or biking starting at 2PM. Pre-registration is not necessary, but those under 18 years of age must have a parent signature on their form. Registration forms may be obtained at local banks and businesses. And, if you need more information about being a sponsor or registering to participate, please call Kim Riley at (304) 864-0884 or email her at kriley@hospicecarecorp.org
Monday, April 26, 2010
Hospice Information- Source Of Comfort For The Terminally Ill
Finding a hospice that answers all your concerns could be a challenging affair, both physically and mentally. Hospice information is available in plenty, and the important point is to look for the right care that understands your individual needs.
Initially you will have to invest a lot of time and effort on extensive research. The results could be discouraging in the beginning, however with time you will bear the fruits of your labor. It helps to understand your requirements before looking for a suitable hospice. There are innumerable factors you will need to look into, such as the efficiency of the staff, quality of services provided, quality of treatment, emotional and moral support provided, and lots more. The right information will help you understand and be aware of what you need to look out for.
When looking for a suitable hospice, you could go by the recommendations of qualified medical professionals or people with similar experiences of dealing with hospices. While there are several good hospices, there are also those hospices that have earned a bad name owing to negligent services. You would not want to go to a hospice that does not satisfy your requirements or live up to your expectations. This is why it is important to look around carefully and take the opinion of people who matter.
Searching in the yellow pages or online can also be an effective way to locate a good hospice in your area. You could also get in touch with organizations in your state and get a list of licensed hospices with eligibility certificates. This way you are certain to find proper and useful information that will address all your concerns.
Since a hospice is a place where patients with terminal illnesses go for proper treatment, it is important to choose one that provides quality care. This very concept revolves around caring for the terminally ill, making them much more than commercial medical centers. The main aim is to ease the pain and suffering of terminally ill patients. Therefore, the focus here is not so much on curing but reducing or assuaging the pain of patients with terminal sicknesses.
Hospice information focuses on educating patients and their families on the quality and professionalism required while treating terminally ill patients. In a professional and sophisticated hospice, the main goal is to give comfort to the patient, not just physically but also emotionally. A good hospice takes into account the individual needs of patients and their families. If needed, spiritual, emotional, and physical support is even provided to the family members of the patients.
Since each family is unique and different, information reinforces the need to look for a suitable hospice that can meet all your physical, emotional, spiritual, and social needs. Terminally ill patients require special care and attention, and only trained and skilled medical professionals are well suited for the job. Patients who go to hospices are looking for a caring and homely environment where they can rest and find solace during their last days.
Agencies providing hospice services work towards providing the best service to the terminally ill patients ensuring maximum comfort and minimum inconvenience. Visit the http://www.hospice-info.net/ site for more hospice information.
Initially you will have to invest a lot of time and effort on extensive research. The results could be discouraging in the beginning, however with time you will bear the fruits of your labor. It helps to understand your requirements before looking for a suitable hospice. There are innumerable factors you will need to look into, such as the efficiency of the staff, quality of services provided, quality of treatment, emotional and moral support provided, and lots more. The right information will help you understand and be aware of what you need to look out for.
When looking for a suitable hospice, you could go by the recommendations of qualified medical professionals or people with similar experiences of dealing with hospices. While there are several good hospices, there are also those hospices that have earned a bad name owing to negligent services. You would not want to go to a hospice that does not satisfy your requirements or live up to your expectations. This is why it is important to look around carefully and take the opinion of people who matter.
Searching in the yellow pages or online can also be an effective way to locate a good hospice in your area. You could also get in touch with organizations in your state and get a list of licensed hospices with eligibility certificates. This way you are certain to find proper and useful information that will address all your concerns.
Since a hospice is a place where patients with terminal illnesses go for proper treatment, it is important to choose one that provides quality care. This very concept revolves around caring for the terminally ill, making them much more than commercial medical centers. The main aim is to ease the pain and suffering of terminally ill patients. Therefore, the focus here is not so much on curing but reducing or assuaging the pain of patients with terminal sicknesses.
Hospice information focuses on educating patients and their families on the quality and professionalism required while treating terminally ill patients. In a professional and sophisticated hospice, the main goal is to give comfort to the patient, not just physically but also emotionally. A good hospice takes into account the individual needs of patients and their families. If needed, spiritual, emotional, and physical support is even provided to the family members of the patients.
Since each family is unique and different, information reinforces the need to look for a suitable hospice that can meet all your physical, emotional, spiritual, and social needs. Terminally ill patients require special care and attention, and only trained and skilled medical professionals are well suited for the job. Patients who go to hospices are looking for a caring and homely environment where they can rest and find solace during their last days.
Agencies providing hospice services work towards providing the best service to the terminally ill patients ensuring maximum comfort and minimum inconvenience. Visit the http://www.hospice-info.net/ site for more hospice information.
Wednesday, April 21, 2010
Hospice: The 4 Levels of Care
by the Caring.com Editorial Team
There are four levels of care provided by hospices in the United States. Every patient receiving hospice services will be on one of these four levels. A hospice patient can move from one level to another and back, depending on the services required to fulfill his or her needs. The need of the patient will determine their individual level of care.
Routine Home Care Patient at home with symptoms controlled
A patient will be placed at this level of care if he or she resides at home (or a long-term care facility) and does not have symptoms which are out of control. These symptoms could include-but aren't limited to-severe pain, continuous nausea and vomiting, bleeding, acute respiratory distress, and unbearable restlessness or agitation. A patient at this level has access to the following services:
Registered Nurse Visits, Social Worker Visits, Chaplain Visits, Home Health Aide Services, Counselors, Medications, Equipment.
The needs of the patient determine the number of visits from hospice staff members. These needs are established and outlined in a plan of care formed by the hospice team and the patient's physician. The care plan serves as a guideline to assist all those serving the patient with care. At this level of care the patient also has access to an on-call hospice nurse twenty-four hours a day.
Inpatient Care Patient in facility with uncontrolled symptoms
A hospice patient may require inpatient care when his or her symptoms have gotten out of hand and can no longer be managed at home. When these symptoms cannot be controlled on routine home care, then the patient requires extra attention until these symptoms subside. Hospices take aggressive actions to control the symptoms and make the patient comfortable. In order to do this, the patient may be temporarily placed in a hospice home or an acute care hospital. At this level of care, a moment-to-moment assessment of what's happening and what needs to be done takes place. The hospice team and the patient's physician work together to ensure the patient obtains and maintains a tolerable comfort level. Once this has been achieved, the patient will return home and back to routine home care.
Respite Care Patient at facility with symptoms controlled
A patient may be moved to respite care when the caregiver needs a break. Many hospice patients live at home, with their family providing most of the care, sometimes around the clock. Caring for their loved one can be exhausting and very stressful. The family members and/or caregivers need time to themselves and it's important that they take that time. Respite care allows a patient to be temporarily placed in a facility with 24-hour care so the family can rest. If the patient is willing and the family requests it, hospice must provide placement in a facility or a hospice home for the patient. The patient will be transferred to the facility, and according to Medicare regulations, can stay for up to five days before being transferred back home.
Continuous Nursing Care Patient at home with uncontrolled symptoms
A patient would receive continuous nursing care if he or she has symptoms that are out of control and choose to stay at home. This is similar to inpatient care, except that the patient remains in his or her home instead of being placed in a facility. A hospice nurse is required to provide continuous around-the-clock nursing care if the symptoms cannot be controlled while on routine home care. According to the Hospice Patients Alliance, there is only one exception to this requirement: if the hospice has fewer than seven employees, is in a rural or nonmetropolitan area, and does not have the staff to provide continuous nursing care in the home. However, most hospices are required to provide this level of care if it is needed.
Caring.com features original content focused exclusively on eldercare matters. Our 20+ editors and writers research and fact-check every article meticulously, and our advisory board reviews the site regularly to assure the accuracy and relevance of the material we publish. We have hundreds of articles and checklists on health, housing, finance, legal and family issues, and other caregiving concerns, and we're adding new articles and other resources every day
There are four levels of care provided by hospices in the United States. Every patient receiving hospice services will be on one of these four levels. A hospice patient can move from one level to another and back, depending on the services required to fulfill his or her needs. The need of the patient will determine their individual level of care.
Routine Home Care Patient at home with symptoms controlled
A patient will be placed at this level of care if he or she resides at home (or a long-term care facility) and does not have symptoms which are out of control. These symptoms could include-but aren't limited to-severe pain, continuous nausea and vomiting, bleeding, acute respiratory distress, and unbearable restlessness or agitation. A patient at this level has access to the following services:
Registered Nurse Visits, Social Worker Visits, Chaplain Visits, Home Health Aide Services, Counselors, Medications, Equipment.
The needs of the patient determine the number of visits from hospice staff members. These needs are established and outlined in a plan of care formed by the hospice team and the patient's physician. The care plan serves as a guideline to assist all those serving the patient with care. At this level of care the patient also has access to an on-call hospice nurse twenty-four hours a day.
Inpatient Care Patient in facility with uncontrolled symptoms
A hospice patient may require inpatient care when his or her symptoms have gotten out of hand and can no longer be managed at home. When these symptoms cannot be controlled on routine home care, then the patient requires extra attention until these symptoms subside. Hospices take aggressive actions to control the symptoms and make the patient comfortable. In order to do this, the patient may be temporarily placed in a hospice home or an acute care hospital. At this level of care, a moment-to-moment assessment of what's happening and what needs to be done takes place. The hospice team and the patient's physician work together to ensure the patient obtains and maintains a tolerable comfort level. Once this has been achieved, the patient will return home and back to routine home care.
Respite Care Patient at facility with symptoms controlled
A patient may be moved to respite care when the caregiver needs a break. Many hospice patients live at home, with their family providing most of the care, sometimes around the clock. Caring for their loved one can be exhausting and very stressful. The family members and/or caregivers need time to themselves and it's important that they take that time. Respite care allows a patient to be temporarily placed in a facility with 24-hour care so the family can rest. If the patient is willing and the family requests it, hospice must provide placement in a facility or a hospice home for the patient. The patient will be transferred to the facility, and according to Medicare regulations, can stay for up to five days before being transferred back home.
Continuous Nursing Care Patient at home with uncontrolled symptoms
A patient would receive continuous nursing care if he or she has symptoms that are out of control and choose to stay at home. This is similar to inpatient care, except that the patient remains in his or her home instead of being placed in a facility. A hospice nurse is required to provide continuous around-the-clock nursing care if the symptoms cannot be controlled while on routine home care. According to the Hospice Patients Alliance, there is only one exception to this requirement: if the hospice has fewer than seven employees, is in a rural or nonmetropolitan area, and does not have the staff to provide continuous nursing care in the home. However, most hospices are required to provide this level of care if it is needed.
Caring.com features original content focused exclusively on eldercare matters. Our 20+ editors and writers research and fact-check every article meticulously, and our advisory board reviews the site regularly to assure the accuracy and relevance of the material we publish. We have hundreds of articles and checklists on health, housing, finance, legal and family issues, and other caregiving concerns, and we're adding new articles and other resources every day
Sunday, April 18, 2010
Hospice & Palliative Care: Where's the Common Ground?
By the Caring.com Editorial Team
Receiving "The News" A person faced with a new diagnosis that is life-limiting is generally overwhelmed. Everything has changed, and nothing will ever be the same. All of the grief stages can come into play: denial, anger, bargaining, depression and ultimately, acceptance. The person might wonder, Why me? Why now? Can I beat this? The situation can become overwhelming when coupled with confusing medical jargon about palliative care and hospice care. Let's start by clarifying the care options that are available.
Palliative care for life-limiting disease naturally follows curative treatments.
Treatments can include chemotherapy, radiation, blood transfusions, dialysis, physical therapy and more. The goal is to achieve the highest quality of life for the patient while trying to control or eradicate the disease process. This is a time for hope and challenge for the patient and family. It is generally only when all treatment options fail or have been exhausted that the physician may suggest comfort care, which is also known as hospice care.
Similarities & Differences Hospice care and palliative care both provide compassionate care for patients facing life-threatening illnesses. Both share a team-oriented approach to medical care: pain management, symptom management, and emotional and spiritual support that are patient-specific. Both share a common core belief as well: that every patient deserves the very best care possible, and that each of us has the right to die with dignity and respect, pain-free. In fact, the word palliate refers to giving comfort (but not cure). The differences between the two disciplines are subtle. While all hospice care is palliative or comfort care, not all palliative care is considered hospice care. Confused?
Let's look at it another way. The focus of hospice is on caring, when curing is no longer an option. To be eligible for hospice care, two physicians (the primary physician and the hospice physician) must certify the patient's prognosis to be six months or less, should the disease run its natural course. The hospice philosophy embraces death as a natural part of life, and encourages a patient's desire for dignity, respect, and autonomy over his or her own care. Aggressive symptom management and pain control support this philosophy.
Most hospice care is provided in the patient's own home. Some care is also provided in nursing homes, residential care facilities and hospice facilities. Services are provided regardless of religion, race, age or illness. The patient care goals are centered on quality of life as opposed to quantity of life. Hospice care is covered under the Medicare Hospice Benefit, Medicaid, most private insurance plans, HMOs, and other managed care plans. All charges related to the terminal diagnosis, such as medications, durable medical equipment (e.g., a hospital bed), and nursing and supportive services, are paid by the benefit. Hospice care, therefore, is both a philosophy and a method of health care financing for terminally ill patients and families.
Palliative care is very similar to hospice care, but with a broader population. It is not time-restricted-indeed, it can last for years-and no specific therapy is excluded if it can improve the patient's quality of life. Palliative care helps meet the needs of patients and families who are not yet eligible for hospice services as well as those who still want to pursue more aggressive treatments not covered under the hospice reimbursement system. Payment for palliative services is generally paid by the patient's insurance, Medicare or Medicaid (but not under the hospice benefit). Goals of care focus on improving quality of life and helping support patients and families during and after these treatments. Whereas palliative care is appropriate from terminal diagnosis on, when prognosis is uncertain, hospice care focuses on supporting patients with a life expectancy of months, not years. From that standpoint, palliative care should naturally follow curative care, and then evolve into hospice care as the disease process progresses.
Looking to the Future The hospice benefit is written for comfort care only, and is intended for patients with terminal illnesses who have exhausted all curative and therapeutic treatments. In that sense, it can be abrupt and frightening, and generally results in very late hospice referrals from physicians. The challenge for hospices is to find a way to transition from one discipline to another. Patients should have a safe place to explore care options while still receiving palliative treatments-without pressure to enroll in the hospice program later on. This is an important step in patient continuity of care, and one that warrants further attention.
Currently, hospice and palliative care are separate disciplines. Helping patients and families deal with terminal diagnoses and navigating the various palliative therapies available is the goal of both. Finding a way to blend the two would help alleviate the confusion many patients and families experience and help motivate physicians to discuss end-of-life care options earlier in the disease trajectory.
Caring.com features original content focused exclusively on eldercare matters. Our 20+ editors and writers research and fact-check every article meticulously, and our advisory board reviews the site regularly to assure the accuracy and relevance of the material we publish. We have hundreds of articles and checklists on health, housing, finance, legal and family issues, and other caregiving concerns, and we're adding new articles and other resources every day
Receiving "The News" A person faced with a new diagnosis that is life-limiting is generally overwhelmed. Everything has changed, and nothing will ever be the same. All of the grief stages can come into play: denial, anger, bargaining, depression and ultimately, acceptance. The person might wonder, Why me? Why now? Can I beat this? The situation can become overwhelming when coupled with confusing medical jargon about palliative care and hospice care. Let's start by clarifying the care options that are available.
Palliative care for life-limiting disease naturally follows curative treatments.
Treatments can include chemotherapy, radiation, blood transfusions, dialysis, physical therapy and more. The goal is to achieve the highest quality of life for the patient while trying to control or eradicate the disease process. This is a time for hope and challenge for the patient and family. It is generally only when all treatment options fail or have been exhausted that the physician may suggest comfort care, which is also known as hospice care.
Similarities & Differences Hospice care and palliative care both provide compassionate care for patients facing life-threatening illnesses. Both share a team-oriented approach to medical care: pain management, symptom management, and emotional and spiritual support that are patient-specific. Both share a common core belief as well: that every patient deserves the very best care possible, and that each of us has the right to die with dignity and respect, pain-free. In fact, the word palliate refers to giving comfort (but not cure). The differences between the two disciplines are subtle. While all hospice care is palliative or comfort care, not all palliative care is considered hospice care. Confused?
Let's look at it another way. The focus of hospice is on caring, when curing is no longer an option. To be eligible for hospice care, two physicians (the primary physician and the hospice physician) must certify the patient's prognosis to be six months or less, should the disease run its natural course. The hospice philosophy embraces death as a natural part of life, and encourages a patient's desire for dignity, respect, and autonomy over his or her own care. Aggressive symptom management and pain control support this philosophy.
Most hospice care is provided in the patient's own home. Some care is also provided in nursing homes, residential care facilities and hospice facilities. Services are provided regardless of religion, race, age or illness. The patient care goals are centered on quality of life as opposed to quantity of life. Hospice care is covered under the Medicare Hospice Benefit, Medicaid, most private insurance plans, HMOs, and other managed care plans. All charges related to the terminal diagnosis, such as medications, durable medical equipment (e.g., a hospital bed), and nursing and supportive services, are paid by the benefit. Hospice care, therefore, is both a philosophy and a method of health care financing for terminally ill patients and families.
Palliative care is very similar to hospice care, but with a broader population. It is not time-restricted-indeed, it can last for years-and no specific therapy is excluded if it can improve the patient's quality of life. Palliative care helps meet the needs of patients and families who are not yet eligible for hospice services as well as those who still want to pursue more aggressive treatments not covered under the hospice reimbursement system. Payment for palliative services is generally paid by the patient's insurance, Medicare or Medicaid (but not under the hospice benefit). Goals of care focus on improving quality of life and helping support patients and families during and after these treatments. Whereas palliative care is appropriate from terminal diagnosis on, when prognosis is uncertain, hospice care focuses on supporting patients with a life expectancy of months, not years. From that standpoint, palliative care should naturally follow curative care, and then evolve into hospice care as the disease process progresses.
Looking to the Future The hospice benefit is written for comfort care only, and is intended for patients with terminal illnesses who have exhausted all curative and therapeutic treatments. In that sense, it can be abrupt and frightening, and generally results in very late hospice referrals from physicians. The challenge for hospices is to find a way to transition from one discipline to another. Patients should have a safe place to explore care options while still receiving palliative treatments-without pressure to enroll in the hospice program later on. This is an important step in patient continuity of care, and one that warrants further attention.
Currently, hospice and palliative care are separate disciplines. Helping patients and families deal with terminal diagnoses and navigating the various palliative therapies available is the goal of both. Finding a way to blend the two would help alleviate the confusion many patients and families experience and help motivate physicians to discuss end-of-life care options earlier in the disease trajectory.
Caring.com features original content focused exclusively on eldercare matters. Our 20+ editors and writers research and fact-check every article meticulously, and our advisory board reviews the site regularly to assure the accuracy and relevance of the material we publish. We have hundreds of articles and checklists on health, housing, finance, legal and family issues, and other caregiving concerns, and we're adding new articles and other resources every day
Tuesday, April 13, 2010
What is the Difference Between Hospice and Palliative Care?
By Allen Jesson.
American hospice service started with the Connecticut Hospice in March 1974. Today, there are over 2,884 Medicare-certified hospices, and an additional 200 volunteer hospices in the U.S., with as many as 1.5 million Americans seeking hospice treatment in recent years. As a program designed to facilitate palliative care for terminally ill patients and their families, many people wonder, what then is the difference between hospice and palliative care, or are they one in the same?
While palliative care addresses patients with life-threatening illnesses, anyone, regardless of life expectancy, can receive this type of care. Hospice, meanwhile, provides for patients who can no longer benefit from regular medical treatment, per a doctor's determination, and are in the last stages of a terminal illness. Hospice and palliative care share the philosophy of maintaining and managing the patient's quality of life. Palliative care programs generally address the physical, psychosocial, and spiritual needs and expectations of a patient with a life-threatening illness, at any time during that illness, even if life expectancy extends to years.
Palliative care does not preclude aggressive treatment of an illness, and provides comfort to patients and their loved ones. Patients receive palliative care from a team of doctors, nurses, social workers and clergy in their home or a hospital, but also in nursing or assisted living facilities. Hospitals, hospices, skilled nursing facilities and health care clinics provide these services, which may include a monthly visit to a doctor, or weekly home visits from a social worker or nurse to help manage pain and symptoms. The goal of hospice care is to keep pain and suffering of a person with a terminal diagnosis to a minimum, and not to cure the illness. Provided in the patient's home or in hospice centers, hospitals, skilled nursing homes and other long-term care facilities, hospice is based on the belief that every person has the right to die pain-free and with dignity, and with family and friends nearby.
Like palliative care, a hospice team is comprised of doctors, nurses, caregivers, social workers and trained volunteers who manage the patient's pain and symptoms; assist with the emotional and spiritual aspects of dying, provide needed medications and supplies, coach the family on how to care for the patient, and, provide bereavement counseling to surviving loved ones. While Medicare, Medicaid, most private insurance plans, HMOs, and other managed care
organizations provide hospice coverage, Medicare or Medicaid does not currently cover palliative care.
Some private insurance companies cover the costs of care, but it is important for you to ask the palliative care provider how or if the services will be covered and what, if any, costs you will be asked to pay. The goal of hospice care is to keep pain and suffering of a person with a terminal diagnosis to a minimum, and not to cure the illness. Provided in the patient's home or in hospice centers, hospitals, skilled nursing homes and other long-term care facilities, hospice is based on the belief that every person has the right to die pain-free and with dignity, and with family and friends nearby.
Please visit the Gilbert Guide for the very best in Hospice Care and for more information about Palliative Care.
American hospice service started with the Connecticut Hospice in March 1974. Today, there are over 2,884 Medicare-certified hospices, and an additional 200 volunteer hospices in the U.S., with as many as 1.5 million Americans seeking hospice treatment in recent years. As a program designed to facilitate palliative care for terminally ill patients and their families, many people wonder, what then is the difference between hospice and palliative care, or are they one in the same?
While palliative care addresses patients with life-threatening illnesses, anyone, regardless of life expectancy, can receive this type of care. Hospice, meanwhile, provides for patients who can no longer benefit from regular medical treatment, per a doctor's determination, and are in the last stages of a terminal illness. Hospice and palliative care share the philosophy of maintaining and managing the patient's quality of life. Palliative care programs generally address the physical, psychosocial, and spiritual needs and expectations of a patient with a life-threatening illness, at any time during that illness, even if life expectancy extends to years.
Palliative care does not preclude aggressive treatment of an illness, and provides comfort to patients and their loved ones. Patients receive palliative care from a team of doctors, nurses, social workers and clergy in their home or a hospital, but also in nursing or assisted living facilities. Hospitals, hospices, skilled nursing facilities and health care clinics provide these services, which may include a monthly visit to a doctor, or weekly home visits from a social worker or nurse to help manage pain and symptoms. The goal of hospice care is to keep pain and suffering of a person with a terminal diagnosis to a minimum, and not to cure the illness. Provided in the patient's home or in hospice centers, hospitals, skilled nursing homes and other long-term care facilities, hospice is based on the belief that every person has the right to die pain-free and with dignity, and with family and friends nearby.
Like palliative care, a hospice team is comprised of doctors, nurses, caregivers, social workers and trained volunteers who manage the patient's pain and symptoms; assist with the emotional and spiritual aspects of dying, provide needed medications and supplies, coach the family on how to care for the patient, and, provide bereavement counseling to surviving loved ones. While Medicare, Medicaid, most private insurance plans, HMOs, and other managed care
organizations provide hospice coverage, Medicare or Medicaid does not currently cover palliative care.
Some private insurance companies cover the costs of care, but it is important for you to ask the palliative care provider how or if the services will be covered and what, if any, costs you will be asked to pay. The goal of hospice care is to keep pain and suffering of a person with a terminal diagnosis to a minimum, and not to cure the illness. Provided in the patient's home or in hospice centers, hospitals, skilled nursing homes and other long-term care facilities, hospice is based on the belief that every person has the right to die pain-free and with dignity, and with family and friends nearby.
Please visit the Gilbert Guide for the very best in Hospice Care and for more information about Palliative Care.
Monday, April 12, 2010
Recipes from the Heart
Hospice Care Corp. is helping its clients memorialize loved ones by putting together its first ever keepsake cookbook. The collection, titled "Recipes from the Heart," recently featured in a Times West Virginian article, will consist of recipes submitted by family members of past and current patients, volunteers and staff. The proceeds from the book will go towards the non profit organization's efforts to provide for those without the ability to pay for their services.
For more information, contact Kim Riley at 304-864-0884 or e-mail kriley@hospicecarecorp.org
For more information, contact Kim Riley at 304-864-0884 or e-mail kriley@hospicecarecorp.org
Saturday, April 10, 2010
Funeral Pre-Planning: How To Discuss Wishes With Family
By Nicole Krueger
Many people find it unpleasant to think or talk about their own deaths, but preplanning your funeral is one of the best things you can do for the loved ones who will be carrying out your final wishes. As your family gathers to celebrate the holidays, it's a good time to think about discussing your final wishes with those closest to you.
Benefits of preplanning a funeral
Although it may be uncomfortable, planning your funeral is beneficial for several reasons:
1. You will relieve your grieving loved ones of much of the stress associated with planning a funeral.
2. You will have the chance to decide what aspects of your service are important to you.
3. You can ensure you and your remains are treated in accordance with your own values regarding life and death.
4. You'll minimize disputes between family members.
End-of-life care
Funeral preparations aren't the only decisions you should consider making ahead of time. In the event that you become terminally ill, it's a good idea to let your family members know what type of care you wish to receive during your final days. Things you might want to think about include:
1. Who should make your health care decisions if you become unable to make them for yourself.
2. What medical treatments you wish to receive. You can decide whether to be given pain medication, artificial nutrition, and hydration.
3. Whether you wish to be resuscitated if your heart stops or you stop breathing.
4. Where you wish to spend your final days. You may wish to stay at home rather than be hospitalized, for instance.
Broaching the subject
When discussing your final wishes, you should begin by having a conversation with yourself in which you look closely at your desires and begin articulating your choices. Do you want to be buried or cremated? Would you prefer a traditional funeral service or something different? How would you like to be remembered?
It's a good idea to speak with funeral directors at this stage to get a feel for the available options and what they cost. They can help you determine what decisions need to be made.
Once you've figured out your own preferences, it is time to broach the subject with your family. Be open to their input, but be clear and firm about what you want. It can be a difficult and emotional conversation, but making sure everyone is on the same page is an important part of the funeral planning process. It can sometimes be helpful to include outside experts, such as a clergy member or your family physician.
When you're ready, put your specific wishes in writing and leave a copy with at least one trusted loved one. This will help alleviate confusion or disputes later on. However, keep in mind that any verbal or informal conversations you have about your decisions may not be enforceable. In order to legally ensure your wishes will be carried out, you'll need a legal and witnessed document such as a will, a living will, or a medical directive.
Once you've made your wishes clear, you can enjoy peace of mind of knowing you've done everything you can to make your funeral and final days as easy as possible for those who are left behind.
Many people find it unpleasant to think or talk about their own deaths, but preplanning your funeral is one of the best things you can do for the loved ones who will be carrying out your final wishes. As your family gathers to celebrate the holidays, it's a good time to think about discussing your final wishes with those closest to you.
Benefits of preplanning a funeral
Although it may be uncomfortable, planning your funeral is beneficial for several reasons:
1. You will relieve your grieving loved ones of much of the stress associated with planning a funeral.
2. You will have the chance to decide what aspects of your service are important to you.
3. You can ensure you and your remains are treated in accordance with your own values regarding life and death.
4. You'll minimize disputes between family members.
End-of-life care
Funeral preparations aren't the only decisions you should consider making ahead of time. In the event that you become terminally ill, it's a good idea to let your family members know what type of care you wish to receive during your final days. Things you might want to think about include:
1. Who should make your health care decisions if you become unable to make them for yourself.
2. What medical treatments you wish to receive. You can decide whether to be given pain medication, artificial nutrition, and hydration.
3. Whether you wish to be resuscitated if your heart stops or you stop breathing.
4. Where you wish to spend your final days. You may wish to stay at home rather than be hospitalized, for instance.
Broaching the subject
When discussing your final wishes, you should begin by having a conversation with yourself in which you look closely at your desires and begin articulating your choices. Do you want to be buried or cremated? Would you prefer a traditional funeral service or something different? How would you like to be remembered?
It's a good idea to speak with funeral directors at this stage to get a feel for the available options and what they cost. They can help you determine what decisions need to be made.
Once you've figured out your own preferences, it is time to broach the subject with your family. Be open to their input, but be clear and firm about what you want. It can be a difficult and emotional conversation, but making sure everyone is on the same page is an important part of the funeral planning process. It can sometimes be helpful to include outside experts, such as a clergy member or your family physician.
When you're ready, put your specific wishes in writing and leave a copy with at least one trusted loved one. This will help alleviate confusion or disputes later on. However, keep in mind that any verbal or informal conversations you have about your decisions may not be enforceable. In order to legally ensure your wishes will be carried out, you'll need a legal and witnessed document such as a will, a living will, or a medical directive.
Once you've made your wishes clear, you can enjoy peace of mind of knowing you've done everything you can to make your funeral and final days as easy as possible for those who are left behind.
Friday, April 9, 2010
Living Wills and Health Care Directives - "What is Involved?"
The following is an example of a Health Care Directive (many people still refer to this as a Living Will). It is broken down into 3 basic parts. 1) Appointment of the Health Care Agent. 2) Health Care Instructions. 3) Making the Document Legal. Like most legal documents, it can be a bit confusing and overwhelming. The purpose for making this easily available to the public is simple. To help people know what to expect before contacting a lawyer and having him or her draft a directive for them. Nobody likes thinking about their demise or incapacity. However, dealing with such issues is a necessary part of life.
This example should not be used as a substitute for getting solid legal advice from a licensed attorney. Every individual is different. Please consult a lawyer in your area to discuss your specific estate planning needs.
HEALTH CARE DIRECTIVE
I, ___________________________________, understand this document allows me to do One or both of the following:
PART I: Name another person (called the health care agent) to make health care decisions for me if I am unable to decide or speak for myself. My health care agent must make health care decisions for me based on the instructions I provide in this document (Part II), if any, the wishes I have made known to him or her, or must act in my best interest if I have not made my health care wishes known.
And/or
PART II: Give health care instructions to guide others making health care decisions for me. If I have named a health care agent, these instructions are to be used by the agent. These instructions may also be used by my health care providers, others assisting with my health care and my family, in the event I cannot make decisions for myself.
PART I: APPOINTMENT OF HEALTH CARE AGENT
This is who I want to make health care decisions for me if I am unable to decide or speak for myself (I know I can change my agent or alternate agent at any time and I know I do not have to appoint an agent or an alternate agent)
NOTE: If you appoint an agent, you should discuss this health care directive with your agent and give your agent a copy. If you do not wish to appoint an agent, you may leave Part I blank and go to Part II.
When I am unable to decide or speak for myself, I trust and appoint ___________________ to make health care decisions for me. This person is called my health care agent. Relationship of my health care agent to me: ___________________
Telephone number of my health care agent: _________________________
Address of my health care agent: _________________________
(OPTIONAL) APPOINTMENT OF ALTERNATE HEALTH CARE AGENT: If my health care agent is not reasonably available, I trust and appoint _________________ to be my health care agent instead. Relationship of my alternate health care agent to me: ___________________________Telephone number of my alternate health care agent: ___________________________ Address of my alternate health care agent: ___________________________
THIS IS WHAT I WANT MY HEALTH CARE AGENT TO BE ABLE TO
DO IF I AM UNABLE TO DECIDE OR SPEAK FOR MYSELF (I know I can change these choices)
My health care agent is automatically given the powers listed below in (A) through (D).
My health care agent must follow my health care instructions in this document or any other instructions I have given to my agent. If I have not given health care instructions, then my agent must act in my best interest. Whenever I am unable to decide or speak for myself, my health care agent has the power to:
(A) Make any health care decision for me. This includes the power to give, refuse, or
withdraw consent to any care, treatment, service, or procedures. This includes deciding whether to stop or not start health care that is keeping me or might keep me alive, and deciding about intrusive mental health treatment.
(B) Choose my health care providers.
(C) Choose where I live and receive care and support when those choices relate to my
health care needs.
(D) Review my medical records and have the same rights that I would have to give my
medical records to other people.
If I DO NOT want my health care agent to have a power listed above in (A) through (D) OR if I want to LIMIT any power in (A) through (D), I MUST say that here:
______________________________________________________________________
My health care agent is NOT automatically given the powers listed below in (1) and (2). If I WANT my agent to have any of the powers in (1) and (2), I must INITIAL the line in front of the power; then my agent WILL HAVE that power.
______ (1) To decide whether to donate any parts of my body, including organs, tissues, and eyes, when I die.
______ (2) To decide what will happen with my body when I die (burial, cremation).
If I want to say anything more about my health care agent's powers or limits on the powers, I can say it here: ________________________________________________________________________
PART II: HEALTH CARE INSTRUCTIONS
NOTE: Complete this Part II if you wish to give health care instructions. If you appointed an agent in Part I, completing this Part II is optional but would be very helpful to your agent. However, if you chose not to appoint an agent in Part I, you MUST complete some or all of this Part II if you wish to make a valid health care directive.
These are instructions for my health care when I am unable to decide or speak for myself.
These instructions must be followed (so long as they address my needs).
THESE ARE MY BELIEFS AND VALUES ABOUT MY HEALTH CARE
(I know I can change these choices or leave any of them blank)
I want you to know these things about me to help you make decisions about my health care:
My goals for my health care: ________________________________________________________________________________________________________________________________________________
My fears about my health care: ________________________________________________________________________________________________________________________________________________
My spiritual or religious beliefs and traditions: ________________________________________________________________________________________________________________________________________________
My beliefs about when life would be no longer worth living:
________________________________________________________________________________________________________________________________________________
My thoughts about how my medical condition might affect my family:
________________________________________________________________________________________________________________________________________________
THIS IS WHAT I WANT AND DO NOT WANT FOR MY HEALTH CARE
(I know I can change these choices or leave any of them blank) Many medical treatments may be used to try to improve my medical condition or to prolong my life. Examples include artificial breathing by a machine connected to a tube in the lungs, artificial feeding or fluids through tubes, attempts to start a stopped heart, surgeries, dialysis, antibiotics, and blood transfusions. Most medical treatments can be tried for a while and then stopped if they do not help. I have these views about my health care in these situations: (Note: You can discuss general feelings, specific treatments, or leave any of them blank)
If I had a reasonable chance of recovery, and were temporarily unable to decide or speak
for myself, I would want:
________________________________________________________________________________________________________________________________________________
If I were dying and unable to decide or speak for myself, I would want:
________________________________________________________________________________________________________________________________________________
If I were permanently unconscious and unable to decide or speak for myself, I would want:
________________________________________________________________________________________________________________________________________________
If I were completely dependent on others for my care and unable to decide or speak for
myself, I would want: .....
________________________________________________________________________________________________________________________________________________
In all circumstances, my doctors will try to keep me comfortable and reduce my pain. This is how I feel about pain relief if it would affect my alertness or if it could shorten my life:
________________________________________________________________________________________________________________________________________________
There are other things that I want or do not want for my health care, if possible:
Who I would like to be my doctor:
________________________________________________________________________________________________________________________________________________
Where I would like to live to receive health care:
________________________________________________________________________________________________________________________________________________
Where I would like to die and other wishes I have about dying:
________________________________________________________________________________________________________________________________________________
My wishes about donating parts of my body when I die:
________________________________________________________________________________________________________________________________________________
My wishes about what happens to my body when I die (cremation, burial):
________________________________________________________________________________________________________________________________________________
Any other things:
________________________________________________________________________________________________________________________________________________
PART III: MAKING THE DOCUMENT LEGAL
This document must be signed by me. It also must either be verified by a notary public
(Option 1) OR witnessed by two witnesses (Option 2). It must be dated when it is verified or witnessed.I am thinking clearly, I agree with everything that is written in this document, and I have made this document willingly.
___________________________________
My Signature
___________________________________
Date signed:
___________________________________
Date of birth:
___________________________________
Address:
If I cannot sign my name, I can ask someone to sign this document for me.
_____________________________________________________
Signature of the person who I asked to sign this document for me.
________________________________________________________
Printed name of the person who I asked to sign this document for me.
Option 1: Notary Public
In my presence on___________________________________ (date), __________________________________________ (name) acknowledged his/her
signature on this document or acknowledged that he/she authorized the person signing this document to sign on his/her behalf. I am not named as a health care agent or alternate health care agent in this document.
___________________________________________
(Signature of Notary)
(Notary Stamp)
Option 2: Two Witnesses
Two witnesses must sign. Only one of the two witnesses can be a health care provider or an employee of a health care provider giving direct care to me on the day I sign this document.
Witness One:
(i) In my presence on _______________________ (date), ________________ (name) acknowledged his/her signature on this document or acknowledged that he/she authorized the person signing this document to sign on his/her behalf.
(ii) I am at least 18 years of age.
(iii) I am not named as a health care agent or an alternate health care agent in this document.
(iv) If I am a health care provider or an employee of a health care provider giving direct
care to the person listed above in (A), I must initial this box: [ ]
I certify that the information in (i) through (iv) is true and correct.
______________________________________
(Signature of Witness One)
Address: ________________________________________________________________________________________________________________________________________________
Witness Two:
(i) In my presence on ________________________ (date), _________________ (name) acknowledged his/her signature on this document or acknowledged that he/she authorized the person signing this document to sign on his/her behalf.
(ii) I am at least 18 years of age.
(iii) I am not named as a health care agent or an alternate health care agent in this document.
(iv) If I am a health care provider or an employee of a health care provider giving direct
care to the person listed above in (A), I must initial this box: [ ]
I certify that the information in (i) through (iv) is true and correct.
________________________________________
(Signature of Witness Two)
Address:
________________________________________________________________________________________________________________________________________________
REMINDER: Keep this document with your personal papers in a safe place (not in a safe deposit box). Give signed copies to your doctors, family, close friends, health care agent, and alternate health care agent. Make sure your doctor is willing to follow your wishes. This document should be part of your medical record at your physician's office and at the hospital, home care agency, hospice, or nursing facility where you receive your care.
Some of this information was taken from Minnesota statute section 145C.16. This should not be considered legal advice, it is provided as a public service.
Written by Blake Vanderhyde. Learn more at http://www.yourminnesotalawyer.com and http://www.minnesotaestateplanningguide.com
Thursday, April 8, 2010
Planning for Tomorrow
Following is part three of an interview with Phyllis Slater, owner of Slater Solutions LLC. Ms. Slater has devoted years to providing coaching and concierge services to the working caregiver and aging parent. Visit Phyllis Slater's website simply by Googling the name Phyllis Slater.
Q. Why should we plan for tomorrow now?
A. Possible situation... I have vision difficulties but can still live without assistance. However, a year from now I may need help with cooking, cleaning, shopping, driving and paying bills.
Medications can be placed in a pre-programmed medication dispenser with monitoring company assistance. If the medication is not taken in a reasonable period of time, the company will call my son. Non-medical in-home care will be hired to attend to all these needs.
If I fall on the coffee table and spend a week in the hospital, the geriatric managers may recommend a rehabilitation center for treatment.
Whether I am able to return home or must move to a living facility, my family will hire an organizer to come in and rearrange furniture, lower items in the kitchen so they can be reached, removed unwanted items, and boxed up rarely used items.
A real estate agent will already be chosen, but not hired, just in case I must sell the home. Again, that is planning for the unknown. Whatever the outcome, the stress of last minute decision-making has been reduced.
Remember that part of this relocation process is finding a reliable moving company, and now there are companies that, for a fair rate, will pick up unwanted items.
Now, there are Adult Day Care Centers for individuals with mental challenges. Our senior center has one that gives family caregivers some respite time --providing the social interaction they need.
If I cannot return home because of extra caregiving needs, it may be appropriate to move into an Assisted Living facility, which is private pay. Assisted living facilities allow residents to feel more independent while having 24/7 caregiving when needed. Having social interaction with peers can reduce depression and keep the mind more alert. There are Continuing Care Facilities that have Independent, Assisted Living and Nursing Care all on the same property -- for easing into each other while being accessible to friends created on-site.
Spending time in the elder care field, I planned ahead by contacting a Long Term Care Insurance Specialist.
Next, my son was made legal guardian with all my finances in both of our names (Elder Care Attorney). In addition, my Financial Planner has made wise investments for me over the years. I made sure my son and other family members have copies of all paperwork. Each child understands the reason for my decision-making.
My friend did not plan ahead of time, has no money for care, and applied for Medicaid. This is why I am so passionate about planning ahead. This may mean that she will have to go into a nursing home rather than the assisted living facility.
A small amount of Assist Living facilities qualify for Medicaid Waiver programs. This means that Medicaid would pay some of the cost, which is great for those with financial difficulties. However, the waiting list for an opening could take years. Talk with a government agency about the options available in the meantime.
Another option is to live at home with 24/7 care, and use the equity of the home for a Reverse Mortgage. This option is a safety net, allowing for quality care in the comfort of your own home. There are advantages and disadvantages with using a Reverse Mortgage, so check with the Reverse Mortgage Specialists before making a decision. The key is to learn about it now. If you don’t use this, pass the information to others later.
In some states there are Senior Foster Homes, which are residential homes with 24/7 on-site care. With only four bedrooms, each resident receives personal care and can participate in responsibilities -- such as setting the dinner table. These homes can take the place of an assisted living or even nursing home. Professional staff is hired or the owner could be a licensed nurse. This is a great option but also requires private pay.
Hospice care is now provided in the home, the care facility, or their own hospice faculties. The requirement is usually a paper from the doctor saying it is predicted a person’s life will end within six months. Naturally, if this does not happen, the care should still be available. Different states may have different requirements for keeping hospice beyond that time. This is a service that is sadly underutilized. To my knowledge, there is no cost to the family for this service.
James Armstrong also serves as the Editor of NowWhatJobs.net, the resource for job and career transitions for workers 40 years old and over, Baby Boomers and Active Seniors. Read NowWhatJobs.net for skills training, relocation options, job opportunities and much more. In addition, James is the author of "Now What? Discovering Your New Life and Career After 50" and the President of James Armstrong & Associates, Inc., a media representation firm based in Suburban Chicago.
Q. Why should we plan for tomorrow now?
A. Possible situation... I have vision difficulties but can still live without assistance. However, a year from now I may need help with cooking, cleaning, shopping, driving and paying bills.
Medications can be placed in a pre-programmed medication dispenser with monitoring company assistance. If the medication is not taken in a reasonable period of time, the company will call my son. Non-medical in-home care will be hired to attend to all these needs.
If I fall on the coffee table and spend a week in the hospital, the geriatric managers may recommend a rehabilitation center for treatment.
Whether I am able to return home or must move to a living facility, my family will hire an organizer to come in and rearrange furniture, lower items in the kitchen so they can be reached, removed unwanted items, and boxed up rarely used items.
A real estate agent will already be chosen, but not hired, just in case I must sell the home. Again, that is planning for the unknown. Whatever the outcome, the stress of last minute decision-making has been reduced.
Remember that part of this relocation process is finding a reliable moving company, and now there are companies that, for a fair rate, will pick up unwanted items.
Now, there are Adult Day Care Centers for individuals with mental challenges. Our senior center has one that gives family caregivers some respite time --providing the social interaction they need.
If I cannot return home because of extra caregiving needs, it may be appropriate to move into an Assisted Living facility, which is private pay. Assisted living facilities allow residents to feel more independent while having 24/7 caregiving when needed. Having social interaction with peers can reduce depression and keep the mind more alert. There are Continuing Care Facilities that have Independent, Assisted Living and Nursing Care all on the same property -- for easing into each other while being accessible to friends created on-site.
Spending time in the elder care field, I planned ahead by contacting a Long Term Care Insurance Specialist.
Next, my son was made legal guardian with all my finances in both of our names (Elder Care Attorney). In addition, my Financial Planner has made wise investments for me over the years. I made sure my son and other family members have copies of all paperwork. Each child understands the reason for my decision-making.
My friend did not plan ahead of time, has no money for care, and applied for Medicaid. This is why I am so passionate about planning ahead. This may mean that she will have to go into a nursing home rather than the assisted living facility.
A small amount of Assist Living facilities qualify for Medicaid Waiver programs. This means that Medicaid would pay some of the cost, which is great for those with financial difficulties. However, the waiting list for an opening could take years. Talk with a government agency about the options available in the meantime.
Another option is to live at home with 24/7 care, and use the equity of the home for a Reverse Mortgage. This option is a safety net, allowing for quality care in the comfort of your own home. There are advantages and disadvantages with using a Reverse Mortgage, so check with the Reverse Mortgage Specialists before making a decision. The key is to learn about it now. If you don’t use this, pass the information to others later.
In some states there are Senior Foster Homes, which are residential homes with 24/7 on-site care. With only four bedrooms, each resident receives personal care and can participate in responsibilities -- such as setting the dinner table. These homes can take the place of an assisted living or even nursing home. Professional staff is hired or the owner could be a licensed nurse. This is a great option but also requires private pay.
Hospice care is now provided in the home, the care facility, or their own hospice faculties. The requirement is usually a paper from the doctor saying it is predicted a person’s life will end within six months. Naturally, if this does not happen, the care should still be available. Different states may have different requirements for keeping hospice beyond that time. This is a service that is sadly underutilized. To my knowledge, there is no cost to the family for this service.
James Armstrong also serves as the Editor of NowWhatJobs.net, the resource for job and career transitions for workers 40 years old and over, Baby Boomers and Active Seniors. Read NowWhatJobs.net for skills training, relocation options, job opportunities and much more. In addition, James is the author of "Now What? Discovering Your New Life and Career After 50" and the President of James Armstrong & Associates, Inc., a media representation firm based in Suburban Chicago.
Monday, April 5, 2010
Hospice and the Family Caregiver
Caring for a loved one at the end of life is one of the most physically and emotionally demanding situations a family member may ever face.
There is a sense of loss and sadness that begins when a family learns of a serious or life-limiting diagnosis, and the levels of stress can continue to grow throughout an illness. There can be a financial toll that caring for a dying loved one brings. Even when the role of caregiver ends, there are new issues that arise as the person incorporates the loss in their life as faces living without their loved one.
For family members thrust into the role of caregiver without warning or little preparation, the experience can be frightening.
Yet care exists that address many of these concerns: Hospice.
Hospice care provides high-quality care and services to the patient while offering invaluable support to the family caregivers. Through bereavement care and services, ongoing assistance for family caregivers continues even after the death of their loved one.
In addition to expert medical care and pain management, hospice focuses on the quality of life for patients and families. They help the people they serve live life to its fullest. The wishes of the patient and family are always a priority and hospice brings hope, dignity and peace to all they care for.
Support, caregiving training and assistance are made available by hospice professionals and trained volunteers. The entire hospice team brings compassion and empathy when they are needed most.
Many families concerned with the costs of care are often surprised to find out that hospice is fully covered by Medicare. Medicaid, most private insurance plans and HMOs also provide for hospice care. Yet hospices care for all in need, regardless of ability to pay.
Many people do not understand the support and comfort that hospice provides to patients and families at the end of life’s journey. A partnership is created between family caregivers and hospice staff that most noted for its deep compassion and caring.
Community hospices are ready to help family caregivers learn more about care options and available services. Helping patients and families during one of life’s most challenging journeys is what hospice does every day.
For more information, contact 1-866-656-9790 or visit http://hospicecarecorp.org/.
There is a sense of loss and sadness that begins when a family learns of a serious or life-limiting diagnosis, and the levels of stress can continue to grow throughout an illness. There can be a financial toll that caring for a dying loved one brings. Even when the role of caregiver ends, there are new issues that arise as the person incorporates the loss in their life as faces living without their loved one.
For family members thrust into the role of caregiver without warning or little preparation, the experience can be frightening.
Yet care exists that address many of these concerns: Hospice.
Hospice care provides high-quality care and services to the patient while offering invaluable support to the family caregivers. Through bereavement care and services, ongoing assistance for family caregivers continues even after the death of their loved one.
In addition to expert medical care and pain management, hospice focuses on the quality of life for patients and families. They help the people they serve live life to its fullest. The wishes of the patient and family are always a priority and hospice brings hope, dignity and peace to all they care for.
Support, caregiving training and assistance are made available by hospice professionals and trained volunteers. The entire hospice team brings compassion and empathy when they are needed most.
Many families concerned with the costs of care are often surprised to find out that hospice is fully covered by Medicare. Medicaid, most private insurance plans and HMOs also provide for hospice care. Yet hospices care for all in need, regardless of ability to pay.
Many people do not understand the support and comfort that hospice provides to patients and families at the end of life’s journey. A partnership is created between family caregivers and hospice staff that most noted for its deep compassion and caring.
Community hospices are ready to help family caregivers learn more about care options and available services. Helping patients and families during one of life’s most challenging journeys is what hospice does every day.
For more information, contact 1-866-656-9790 or visit http://hospicecarecorp.org/.
Saturday, April 3, 2010
Don't Wait
It’s an all too common situation. A family is at the bedside of a loved one who is seriously ill and nearing the end of life. Each member of the family has a different idea of what should be done and what the patient would have wanted.
Far too many people wait until they are in the midst of a health care crisis before thinking about what options are available or what care they or their loved ones would have wanted. Hospice professionals deal with these challenging situations every day – that’s what they are trained to do.
When a family is coping with a serious illness and a cure is no longer possible, hospice provides the type of care most people say they want at the end of life: comfort and dignity. Considered to be the model for high-quality, compassionate care for people with a life-limiting illness, hospice care includes expert medical care, pain management, and emotional and spiritual support. Care is provided by an inter-disciplinary team of professionals and trained volunteers. The wishes of the patient and family are always at the center of care.
Most hospice care is provided in the home – where the majority of Americans have said they would want to be at this time. Care is also provided in nursing homes, assisted living facilities, and hospice centers.
Care is paid for by Medicare, Medicaid, and most private insurance plans and HMOs.
The National Hospice and Palliative Care Organization reports that more than 1.4 million people received care from our nation’s hospices last year.
Hospice providers can help with information about care options and choices and ensure you live as fully as possible throughout your entire life. They will make sure your loved ones receive support as well.
One of the best ways to make sure you and your loved ones benefit fully from hospice, should you ever need this care, is to talk about it before it becomes an issue.
For more information, contact 1-866-656-9790 or visit http://hospicecarecorp.org/.
Far too many people wait until they are in the midst of a health care crisis before thinking about what options are available or what care they or their loved ones would have wanted. Hospice professionals deal with these challenging situations every day – that’s what they are trained to do.
When a family is coping with a serious illness and a cure is no longer possible, hospice provides the type of care most people say they want at the end of life: comfort and dignity. Considered to be the model for high-quality, compassionate care for people with a life-limiting illness, hospice care includes expert medical care, pain management, and emotional and spiritual support. Care is provided by an inter-disciplinary team of professionals and trained volunteers. The wishes of the patient and family are always at the center of care.
Most hospice care is provided in the home – where the majority of Americans have said they would want to be at this time. Care is also provided in nursing homes, assisted living facilities, and hospice centers.
Care is paid for by Medicare, Medicaid, and most private insurance plans and HMOs.
The National Hospice and Palliative Care Organization reports that more than 1.4 million people received care from our nation’s hospices last year.
Hospice providers can help with information about care options and choices and ensure you live as fully as possible throughout your entire life. They will make sure your loved ones receive support as well.
One of the best ways to make sure you and your loved ones benefit fully from hospice, should you ever need this care, is to talk about it before it becomes an issue.
For more information, contact 1-866-656-9790 or visit http://hospicecarecorp.org/.
Friday, April 2, 2010
Paying for End-of-Life Care
How to pay for the rising costs of health care? Concerns over these costs are shared not only by elected officials but by almost every family across the country. Many baby boomers are providing care for their aging parents just as they are facing their own health care issues.
Yet, for more than 25 years, the Medicare Hospice Benefit has provided a model for financing end-of-life care that can bring great relief and support to families during one of life’s most difficult times.
This benefit covers virtually all aspects of hospice care with little out-of-pocket expense to the patient or family. As a result, the financial burdens often associated with caring for a terminally-ill patient are lifted.
Hospice care also offers supports to the loved ones of the patient; this brings an added level of relief to the dying person, knowing their loved ones are being cared for as well.
Hospice is paid for through the Medicare Hospice Benefit, Medicaid Hospice Benefit, and most private insurers. In addition, most private health plans and Medicaid in 47 States and the District of Columbia cover hospice services. If a person does not have coverage through Medicare, Medicaid or a private insurance company, hospices will work with the person and their family to ensure needed services can be provided.
Medicare covers these hospice services and pays nearly all of their costs:
• Doctor services
• Nursing care
• Medical equipment (like wheelchairs or walkers)
• Medical supplies (like bandages and catheters)
• Drugs for symptom control and pain relief
• Short-term care in the hospital, including respite and inpatient for pain and symptom management
• Home health aide and homemaker services
• Physical and occupational therapy
• Speech therapy
• Social work services
• Dietary counseling
• Grief support
Medicare will still pay for covered benefits for any health problems that aren’t related to a terminal illness.
Hospice and palliative care involves a team-oriented approach to expert medical care, pain management, and emotional and spiritual support expressly tailored to the patient's needs and wishes. Families making end-of-life decisions for a loved one need compassion and support, not financial worries. The Medicare Hospice Benefit helps alleviate these concerns.
For more information, contact 1-866-656-9790 or visit http://hospicecarecorp.org.
Yet, for more than 25 years, the Medicare Hospice Benefit has provided a model for financing end-of-life care that can bring great relief and support to families during one of life’s most difficult times.
This benefit covers virtually all aspects of hospice care with little out-of-pocket expense to the patient or family. As a result, the financial burdens often associated with caring for a terminally-ill patient are lifted.
Hospice care also offers supports to the loved ones of the patient; this brings an added level of relief to the dying person, knowing their loved ones are being cared for as well.
Hospice is paid for through the Medicare Hospice Benefit, Medicaid Hospice Benefit, and most private insurers. In addition, most private health plans and Medicaid in 47 States and the District of Columbia cover hospice services. If a person does not have coverage through Medicare, Medicaid or a private insurance company, hospices will work with the person and their family to ensure needed services can be provided.
Medicare covers these hospice services and pays nearly all of their costs:
• Doctor services
• Nursing care
• Medical equipment (like wheelchairs or walkers)
• Medical supplies (like bandages and catheters)
• Drugs for symptom control and pain relief
• Short-term care in the hospital, including respite and inpatient for pain and symptom management
• Home health aide and homemaker services
• Physical and occupational therapy
• Speech therapy
• Social work services
• Dietary counseling
• Grief support
Medicare will still pay for covered benefits for any health problems that aren’t related to a terminal illness.
Hospice and palliative care involves a team-oriented approach to expert medical care, pain management, and emotional and spiritual support expressly tailored to the patient's needs and wishes. Families making end-of-life decisions for a loved one need compassion and support, not financial worries. The Medicare Hospice Benefit helps alleviate these concerns.
For more information, contact 1-866-656-9790 or visit http://hospicecarecorp.org.
Thursday, April 1, 2010
Ten Myths about Hospice and Palliative Care
Ten Myths about Hospice and Palliative Care
Hospice isn’t a place. And hospice care is not just about those who are dying. Hospice is a comprehensive kind of care that focuses on living—it’s about living as fully as possible, surrounded by family and friends, up until the end of life. Palliative care brings this special philosophy of care to people earlier in the course of a serious illness.
Last year, 1.4 million dying Americans were served by the nation’s hospice providers, reports the National Hospice and Palliative Care Organization. Yet there are many myths about hospice that keep people from getting this compassionate care when they need it most.
If this information about hospice surprises you, take the time to find out more. The best time to learn about hospice is before someone in your family is facing a health care crisis.
For more information, contact 1-866-656-9790 or visit http://hospicecarecorp.org/.
Hospice isn’t a place. And hospice care is not just about those who are dying. Hospice is a comprehensive kind of care that focuses on living—it’s about living as fully as possible, surrounded by family and friends, up until the end of life. Palliative care brings this special philosophy of care to people earlier in the course of a serious illness.
Last year, 1.4 million dying Americans were served by the nation’s hospice providers, reports the National Hospice and Palliative Care Organization. Yet there are many myths about hospice that keep people from getting this compassionate care when they need it most.
| MYTH | REALITY |
| Hospice is where you go when there is nothing more a doctor can do. | Hospice is a philosophy of care providing medical, emotional, and spiritual care focusing on comfort and quality of life. |
| Good care at the end of life is very expensive. | Medicare beneficiaries pay little or nothing for hospice, and most insurance plans, HMOs and managed care plans include hospice coverage. |
| Hospice is only for the last few days of life. | Hospice patients and families can receive care for six months or longer, depending upon the course of the illness. |
| Choosing hospice means giving up all medical treatment. | Hospice places the patient and family at the center of the care-planning process and provides high-quality pain management and symptom control. |
| Everyone dies in a hospital. | Hospice goes to the patient and family at home—whether that’s a private home, a nursing home or assisted living facility, or a hospice residence. |
| Hospice is only for cancer or AIDS patients. | Fifty percent of hospice patients are diagnosed with conditions other than cancer or AIDS. |
| Families are not able to care for people with terminal illnesses. | Hospice involves families, and offers them professional support and training in caring for their loved ones. |
| Hospice is just for the elderly. | Hospice serves anyone facing a life-limiting illness, regardless of age. |
| There’s no hospice in my area. | Less than one percent of Medicare beneficiaries live in an area where hospice is not available. |
| Hospice only focuses on the dying process. | Hospice offers grief and bereavement services to family members and the community. |
If this information about hospice surprises you, take the time to find out more. The best time to learn about hospice is before someone in your family is facing a health care crisis.
For more information, contact 1-866-656-9790 or visit http://hospicecarecorp.org/.
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